Weill Cornell Medicine Events

Genetic Testing for Rare Cancers: The Importance of Knowing Your Family History

Target Audience – Patients who would benefit from understanding how best to navigate the complex health system and be made aware of the supportive services available to help them coordinate care. Providers to understand the challenges that patients face. From disciplines of rare disease such as melanoma, brain cancers, and sarcoma among others.

Goals – In alignment with the Dan McMenamin Endowment (DME) mission, the event strives to foster cooperation among patients, physicians, and researchers by educating patients on the complexities of collaborative care and offering resources to guide the patient in making informed decisions about their care. The target audience for the event is patients and caregivers of those diagnosed with or have the potential for diagnosis of rare cancers. Physicians and researchers in the rare disease space will also be encouraged to attend to hear directly from patients/caregivers and improve their knowledge of patient-centric care.


Event Program:

Opening Remarks & Introductions

Antonio P. DeRosa (WCM) will provide an overview of the event and opening remarks


“Dancing with Uncertainty: Important Decisions & Limited Information”

Dr. Guy Maytal (WCM) speaking on psychosocial aspects of genetic testing

“Genetics, Genomics, Family History and Cancer”

Dr. Nicolas Robine (New York Genome Center) speaking on genomic testing and family history of disease

“It may not be rare, but it is no less significant”

Ms. Nila Charles (Patient Advisor – NYP/WCM Cancer Center PFAC) speaking on the patient perspective with genetic testing


Panel Discussion and Q&A

Moderated by Dr. Andrea Betesh (WCM) and Michelle Primiano (WCM) from the Clinical Cancer Genetics team

Dial-In Information


Thursday, November 5 at 4:00pm to 6:00pm

Virtual Event
Event Type

Lecture/Seminar, Patient Care Event, Information Session


Cardiothoracic Surgery, Thoracic Surgery, Cell and Developmental Biology, Dermatology, Genetic Medicine, Medicine, Gastroenterology and Hepatology, Geriatric and Palliative Medicine, Hematology/Medical Oncology, Immunology, Nephrology & Hypertension, Center for Aging Research and Clinical Care, Center for Lymphoma and Myeloma, Iris Cantor Women's Health Center, Irving Sherwood Wright Center on Aging, Jay Monahan Center for Gastrointestinal Health, Obstetrics and Gynecology, Otolaryngology (ENT), Pathology and Laboratory Medicine, Psychiatry, Healthcare Policy & Research, Radiology, Radiation Oncology, Surgery, Urology, Center for Complementary and Integrative Medicine, Institute for Computational Biomedicine, Clinical & Translational Science Center (CTSC), Samuel J. Wood Library, Faculty Affairs, Office of Diversity and Inclusion, Global Health Education, Information Technologies & Services, External Affairs, General Surgery, Oral and Maxillofacial Surgery and Dentistry, Transplantation Surgery, Breast Center, Department of Cardiothoracic Surgery, Cardiac Surgery, Department of Surgery, Department of Urology, Center for Healthcare Informatics and Policy (CHiP), Faculty Development, Tri-Institutional MD-PhD Program, Brain and Mind Research Institute, Graduate School of Medical Sciences, Primary Care (WCMA), Meyer Cancer Center, Institute for Precision Medicine, Myra Mahon Patient Resource Center, General Internal Medicine, Public Health Programs, Joint Clinical Trials Office (JCTO), Endocrine Surgery, Colon and Rectal Surgery, Head and Neck Cancer Program, GI Oncology Program, Lung Cancer and Thoracic Oncology Program, Interventional Radiology, Bladder Cancer Program


Education, Research, Patient Care



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